tag:blogger.com,1999:blog-9622795023173060912024-03-13T12:58:59.806-05:00Kyle Bradley Staples"I will praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well."
~Psalm 139:14Unknownnoreply@blogger.comBlogger62125tag:blogger.com,1999:blog-962279502317306091.post-11147401273500240222009-07-17T10:06:00.002-05:002009-07-17T10:18:43.601-05:00<span style="font-size:130%;"><strong>Several people have asked about making donations in Kyle's name, and we would like all donations to be made to First Baptist Church, Glen Rose. Then, we will turn all that money over to the Ronald McDonald House of Fort Worth. The address for the church is P.O Box 65, Glen Rose, TX 76043. Please indicate that the donation is being made in Kyle's memory. Thank you for your donations. This will help another family who is going through a similar crisis. To God be the Glory, great things He has done.</strong></span>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-962279502317306091.post-47807057626549197052009-07-13T16:32:00.007-05:002009-07-13T16:43:30.545-05:00<span style="color:#33cc00;">We will gather one last time to celebrate the life of Kyle Bradley Staples. Steve and I have decided to have a Celebration of Life Service that will be held on Thursday, July 16 at 1:00 at First Baptist Church in Glen Rose. Please join us in a time of praise and worship as we thank the Lord for giving us our sweet baby boy.</span>Unknownnoreply@blogger.com6tag:blogger.com,1999:blog-962279502317306091.post-65073450839960150702009-07-11T21:14:00.002-05:002009-07-11T22:05:03.272-05:00<span style="font-size:130%;">Kyle continued vomiting and not tolerating his milk last night, so they turned it off. We met with Dr. Davis, Dr. Tam (heart <span id="SPELLING_ERROR_0" class="blsp-spelling-corrected">surgeon</span>), and some other doctors today. Dr. Tam's reputation is that he is the last one to give up or quit on a child. He told us today with tears in his eyes that if it were his son, he would withdraw support. They all said <span id="SPELLING_ERROR_1" class="blsp-spelling-corrected">basically</span> the same. </span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">Shiloh and I had been praying about what to do. Between Kyle getting no milk and the doctors <span id="SPELLING_ERROR_2" class="blsp-spelling-corrected">recommendations</span>, it became clear.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">With the Staples and <span id="SPELLING_ERROR_3" class="blsp-spelling-error">Ferren</span> families gathered, we took Kyle into a more personal closed room. . . . and pulled the breathing machine. Brent read some Psalms. After a few <span id="SPELLING_ERROR_4" class="blsp-spelling-corrected">minutes</span> of labored breaths, God answered my prayers. The answer was no.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">Ultimately, though, our prayer was for the Lord's will to be done. And I believe it was. No more poking and prodding. No more pain. No more dialysis. We wanted to take Kyle home. He's home now. He will not come to me, but I will go to him.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">This will be the last post. There is no way to thank everyone who has come by, called, given us food and money, taken care of us, taken care of Abigail, and most importantly, prayed for us. I wish we could thank everyone properly, but there is no way. If I have one final request on this blog, it would be to continue to remember us and especially Shiloh in your prayers as the <span id="SPELLING_ERROR_5" class="blsp-spelling-corrected">grieving</span> process is only just beginning. </span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">To God be the Glory.</span>Unknownnoreply@blogger.com43tag:blogger.com,1999:blog-962279502317306091.post-57137318489949948412009-07-10T19:48:00.002-05:002009-07-10T22:38:47.773-05:00<span style="font-size:130%;">The doctor came by tonight and talked with us. To summarize, he basically told us we were to the point where we were hurting Kyle unnecessarily.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">We told Abigail today that the doctors thought brother was going to die. That was hard. She took it better than we did. We'll see if it sinks in; she's only four, but she's so smart.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">We are going to try to meet with Dr. Susan Davis tomorrow. Shiloh and I really connected with her, and she also seems to be the most optimistic. If she agrees with the other doctors that we need to quit, then we will have a decision to make. A decision that no parent should ever have to make.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">Kyle has basically been on life support (breathing machine) for over ten weeks. I think what the doctors are saying is that whether we turn the breathing machine off or leave it on, it doesn't change his chances of healing. The only difference is how long he survives.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">The God we serve is powerful enough to heal Kyle, regardless of our decision. I know that. He opens doors that no one can close, and He closes doors that no one can open. We're just praying that we make decisions for Kyle that honor God and are in accordance with His will.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">I'm still praying that God will heal little Kyle's body. Perhaps the Lord will be gracious to me and let the child live. We'll see. It ain't over till it's over.</span>Unknownnoreply@blogger.com29tag:blogger.com,1999:blog-962279502317306091.post-4171563984325288812009-07-10T00:14:00.004-05:002009-07-10T22:42:40.473-05:00Thursday Night<span style="font-size:130%;">Kyle threw up some of his milk Wednesday night and Thursday morning, so they took him off for a while, and now have him at half the dose that he was on.</span>Unknownnoreply@blogger.com19tag:blogger.com,1999:blog-962279502317306091.post-32162016680485328982009-07-08T17:37:00.002-05:002009-07-08T17:58:49.165-05:00<span style="font-size:130%;">We had another "care conference" today to meet with all the doctors. They told us that if Kyle had one individual organ problem (heart, kidney, liver, lungs) it would not be so life threatening. Since he has developed multi-organ problems, however, they are giving him little to no hope. As one doctor put it "outside of a miracle, he has zero chance of survival." They talked to us some about limiting his care.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">I told them I thought Kyle <strong><em>was </em></strong>going to make it. Kyle has not given up. I asked the medical staff to continue to work hard for him, which they are.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">"Outside of a miracle" he says. Miracles are what God is in the business of doing. If I am going to pray for God to heal little Kyle's body, then until the answer is clearly no, I'm going to believe that is what's going to happen. If we don't believe it, we need to stop praying for it.</span>Unknownnoreply@blogger.com50tag:blogger.com,1999:blog-962279502317306091.post-5786322629098179382009-07-07T23:13:00.002-05:002009-07-07T23:25:50.581-05:00<span style="font-size:130%;">Kyle has had a very stable, non eventful day. He has been on "full dose" milk now (1 oz per hr.) for almost three days, so we're hopeful that will be the catalyst he needs to mount a recovery. <br />Thanks for all your thoughts and prayers and support!</span>Unknownnoreply@blogger.com6tag:blogger.com,1999:blog-962279502317306091.post-46390200083993954162009-07-06T01:07:00.003-05:002009-07-06T01:25:19.635-05:00<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjChyphenhyphenvWnC-78UbiZAgaSmnAHNUfxSOy2iBaZBRs75kR_lmx0drpCPwt8WcP6xXK4zUHp8xji6LgqK6RrW9wbO1yPaAuXRvbWhQPVKuNuEXQHhRMu0ugJAYR_uBNPy1-R1xkyMxbGU4fpKM/s1600-h/44"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5355228900790755442" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjChyphenhyphenvWnC-78UbiZAgaSmnAHNUfxSOy2iBaZBRs75kR_lmx0drpCPwt8WcP6xXK4zUHp8xji6LgqK6RrW9wbO1yPaAuXRvbWhQPVKuNuEXQHhRMu0ugJAYR_uBNPy1-R1xkyMxbGU4fpKM/s400/44" /></a><br /><div><span style="font-size:130%;">Not much change today. Kyle is holding steady. They upped his milk intake. After dismal urine output for weeks, he peed on one of his nurses today as if to make a statement about his determination.</span></div><br /><div><span style="font-size:130%;">Shiloh got to hold him for almost an hour. First time in 68 days. A picture is worth a thousand words.</span></div>Unknownnoreply@blogger.com29tag:blogger.com,1999:blog-962279502317306091.post-39998856304767984362009-07-04T21:45:00.002-05:002009-07-04T22:52:53.893-05:00<span style="font-size:130%;">Kyle is more swollen today. Truth be told, he is more swollen now than he was six weeks ago. His kidney function is the same as it was six weeks ago, and his liver is worse. His lungs look "hazy" on X-Ray which indicates fluid. His body is not actively shutting down, it's just not healing. The doctors and nurses have been working really hard for Kyle, but if he continues this course, I would expect that they will sit down with us in the next few weeks to make some hard decisions regarding Kyle.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">By the breath of God's nostrils he can part the Red Sea. He obviously has the power to completely heal little Kyle in a second if He so chooses. If He so chooses.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">I'm not loosing faith, I'm loosing hope. There is a BIG difference. My faith is that God loves me and sent His Son, Jesus Christ, to pay the penalty for my sin on the cross; that on the third day He raised Him from the dead, and is now seated at the right hand of God; that I have eternal life with Him in heaven by accepting Christ's sacrifice and committing my life to Him; and that He offers this free gift of eternal life to anyone who would do the same. THAT is where my faith lies. It is unwaivering.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">My hope, however, is waining - hope that it is God's will for my son to be healed. We will continue to pray for God's will to be done, and we will praise Him whatever that may be.</span>Unknownnoreply@blogger.com12tag:blogger.com,1999:blog-962279502317306091.post-82807172415428329532009-07-03T22:44:00.003-05:002009-07-03T22:52:43.066-05:00<span style="font-size:130%;">We have had a more stable day today than we had yesterday. Kyle is positive on his fluids, however this was kind of a recovery day. His blood <span id="SPELLING_ERROR_0" class="blsp-spelling-corrected">pressure</span> has been much better and are hoping to be able to pull fluid off tomorrow. The doctors are going to try really hard at trying to pull the fluid off more slowly and more steady. In the past, they were pulling <span id="SPELLING_ERROR_1" class="blsp-spelling-error">a lot</span> off in 2 or 3 days and then have to give all that fluid back because he gets dehydrated. When Kyle gets to where he is about -200 for the day, they will back off the dialysis. We are hoping this will work as you all know we have been doing this see-saw thing for quite a while. </span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">Thank you to all for your prayers and support. WE COULDN'T DO IT WITHOUT YOU, ALL!!!</span>Unknownnoreply@blogger.com4tag:blogger.com,1999:blog-962279502317306091.post-69927466278118557772009-07-02T21:35:00.002-05:002009-07-02T21:55:39.945-05:00<span style="font-size:130%;">Today was a recovery day for little Kyle. He was doing so good with the dialysis loosing fluid. He did so good, in fact, that he got a little dehydrated which caused his blood pressure to drop. They stopped the dialysis and have been <em>giving</em> him fluid most of the day to get his blood pressure up. Most of the progress (fluid loss) Kyle has made the last two days has been lost.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">At the time of this post, he is stable, back on dialysis, and looking forward to possibly starting milk again tomorrow. He is poised for a good day tomorrow.</span>Unknownnoreply@blogger.com9tag:blogger.com,1999:blog-962279502317306091.post-73681413735591872792009-07-01T22:20:00.002-05:002009-07-01T22:50:31.045-05:00<span style="font-size:130%;">Last night Kyle had a "bleed" in his stomach. Internal bleeds are always a risk when a child is on a high amount of anti-clotting agents (blood thinners). Internal bleeds are also serious business since there is no good way to stop them. The doctors turned off the blood thinner and gave him extra <span id="SPELLING_ERROR_0" class="blsp-spelling-corrected">platelets</span> to help his stomach clot. As you can imagine, this has put him at a higher risk for life threatening blood clots as well. As of this evening, the stomach tube has pretty much stopped sucking blood out, which is good. We're hoping to get over this hurdle quickly and get him back on the milk.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">Kyle seems to take it all in stride. He has such a strong will to live. He cracked his eyes open for his momma today about half a millimeter. He has also lost a substantial amount of fluid today and yesterday, which is his primary job right now.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">May God bless you who are praying for Kyle and we thank you for your comments on the blog. They're always so insightful and encouraging. Sometimes I wish some of you were writing these posts instead of me.</span>Unknownnoreply@blogger.com7tag:blogger.com,1999:blog-962279502317306091.post-12545545991821373612009-06-30T21:12:00.002-05:002009-06-30T22:11:14.043-05:00<span style="font-size:130%;">Lab work indicates that Kyle did not have an infection after all, so they took him off his "just-in-case" antibiotics today. His milk intake was up to 15 ml per hour, but they are currently stopping them to run some tests because they suctioned some bloody fluid out of his stomach and also found some in his urine catheter. We'll see what that's all about. He has been resting comfortably most of the day with no change to speak of.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">I would like to be strong and write encouraging words today, but I'm going to be honest. Shiloh and I are tired. We are ready for this to be <strong>over</strong>. Sixty nine straight days in a hospital. I'm tired of our daughter living like a gypsy. I'm tired of the <span id="SPELLING_ERROR_0" class="blsp-spelling-corrected">helplessness</span> of watching my wife cry. The only time our son is awake is when he is being poked and prodded at. This is an emotional marathon with no finish line in sight. It's a nightmare from which I cannot awake.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">Nevertheless, I <strong><em>am </em></strong>thankful for God's mercy and <span id="SPELLING_ERROR_1" class="blsp-spelling-corrected">loving kindness</span>; I <em><strong>do</strong></em> realize that there are those suffering far more than we are; and I know that nobody likes a complainer.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">We will continue to wait upon our Lord, and rely on Him as our source of strength.</span>Unknownnoreply@blogger.com14tag:blogger.com,1999:blog-962279502317306091.post-22322907144928373322009-06-29T22:32:00.006-05:002009-06-29T22:53:23.361-05:00<span style="font-size:130%;">I know none of you will be surprised when I say...Kyle is still extremely swollen. He still cannot open his eyes and has not been able to for over a week. We are ready to see those eyes. He is actually positive on his fluids for the day. He would be negative on a "normal"day however he had to receive blood products.<br /><br />We were given some rather good news, which we are not always getting. The liver doctor came by and explained that he believes the liver is "clogged" and not damaged. He will give Kyle medicine that will flush his liver and hopefully clear it up. They are continuing to increase his feeds as long as he tolerates it. We are shooting for 16 <span id="SPELLING_ERROR_0" class="blsp-spelling-error">mls</span>/hr. Kyle is up to 11<span id="SPELLING_ERROR_1" class="blsp-spelling-error">mls</span>/hr. His cardiologist looked at the <span id="SPELLING_ERROR_2" class="blsp-spelling-error">eco</span> for today and doesn't believe the "spell" he had the other night was because of the heart. His heart is doing well. The first 24 hours of lab work, on the blood and urine, are negative for infection. (Tests will be run for 48 hours to make sure there is no infection.)<br /></span><br /><span style="font-size:130%;"> Go God Go!!! We give you praise for the good news we <span id="SPELLING_ERROR_3" class="blsp-spelling-corrected">received</span>.</span>Unknownnoreply@blogger.com5tag:blogger.com,1999:blog-962279502317306091.post-28885056777274635642009-06-28T23:30:00.003-05:002009-06-28T23:56:15.220-05:00<span style="font-size:130%;">Kyle can't progress any further until we get his swelling down, so it is therefore our primary objective right now. He continues to loose fluid, which is good. According to my rough calculations, if he continues on the pace he's been loosing, he will loose all/most of his swelling in 12 - 14 days. But that's a big if. </span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">This morning at about 3:00 he had a little bit of a scare (blood pressure and O2 saturation drop), with the outcome being they think he might have another infection. He was put on more antibiotics while we await tests results. He seems to be doing fine now.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">Kyle also <span id="SPELLING_ERROR_0" class="blsp-spelling-corrected">acquired</span> another specialist today: a liver doctor. Recent tests found low <span id="SPELLING_ERROR_1" class="blsp-spelling-corrected">veinous</span> flow to one side of the liver, as well as spotty liver function. While tests are being done, the liver doctor doesn't seem too worried about it. He says the liver is the most resilient organ in the body.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">This might sound like a negative post. But at the end of the day, Kyle is still loosing fluid, he looks comfortable, his skin color is good. . . Go Kyle Go! </span>Unknownnoreply@blogger.com4tag:blogger.com,1999:blog-962279502317306091.post-43500325328380899502009-06-26T23:43:00.009-05:002009-06-29T08:27:18.883-05:00<img id="BLOGGER_PHOTO_ID_5351872890405299506" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 170px; CURSOR: hand; HEIGHT: 161px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi64vNuTQ9otM5V92Ep1-qy6C6QL__qVziSj4lscPQmlH0rTlPITjspaNLrKi-C6WC_xkoH6llO3A03zmpC8oXeSs6d9EUeUhv1K2GA5IlrG7814DilBvUdpdjbzC7HtEcG0vADzIB22vo/s400/41+(2).jpg" border="0" /><br /><div><span style="font-size:130%;">Kyle had a small step back today, as Shiloh and I had yet another anatomy lesson. <span class="blsp-spelling-corrected" id="SPELLING_ERROR_0">Apparently</span>, lactic acid build up in your blood is bad, and in Kyle's case it is an indicator that his stomach and/or intestines aren't tolerating the amount of milk we're feeding him. After several tests, the doctors cut his milk intake back from 14 ml. per hr. to 3 ml. per hr. and will slowly try to increase the dose.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">Some good news. . . the swelling seems to be subsiding ever so slightly in his face, even though they have not been as aggressive at taking off fluid. Also, we are back in the Ronald McDonald House for another 45 day stint. We can now walk back and forth to the hospital.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">Special thanks to anyone reading from Crossings Church in Waco for their love offering. The Lord (through His people) has been providing for our every need during this trying time, even what we don't ask for from people we've never met. Amazing.</span></div>Unknownnoreply@blogger.com6tag:blogger.com,1999:blog-962279502317306091.post-69695515165535517532009-06-25T22:08:00.002-05:002009-06-25T22:47:43.989-05:00<span style="font-size:130%;">It was a fairly boring day for Kyle today, which is good. Slow and steady is what he needs, but it's hard for his impatient parents. He lost so much fluid yesterday, they intentionally pulled off less today for fear of dehydration. While he is still loosing fluid, he continues to be just as swollen (if not more so). Shiloh and I are baffled by this, (how can a 7 lb. baby loose one and a half Coke bottles of fluid since Monday and still look the same?) although the doctors don't seem too concerned.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">I hope all are well who read this. We are certainly not <span id="SPELLING_ERROR_0" class="blsp-spelling-corrected">naive</span> enough to think that we are the only ones going through tough times. So thank you for taking time to think of us and pray for baby Kyle.</span>Unknownnoreply@blogger.com8tag:blogger.com,1999:blog-962279502317306091.post-22240846760615673542009-06-24T22:43:00.004-05:002009-06-24T23:13:57.086-05:00<span style="font-size:130%;">Kyle is two months old today. He continues to loose fluid at a great pace. The doctors have continually upped his doses of milk, to the point that they turned off his <span id="SPELLING_ERROR_0" class="blsp-spelling-error">TPN's</span> (<span id="SPELLING_ERROR_1" class="blsp-spelling-corrected">intravenous</span> nutrients) today. Dr. Tam (heart <span id="SPELLING_ERROR_2" class="blsp-spelling-corrected">surgeon</span>) came by today and removed his last chest drainage tube and removed some stitches from his chest and stomach. His swelling is still refusing to subside, though he looks smaller just because of fewer hoses and equipment hanging from his little body. Overall, another great day in the right direction for baby Kyle. To God be the glory!</span>Unknownnoreply@blogger.com9tag:blogger.com,1999:blog-962279502317306091.post-82033455237719426342009-06-23T20:49:00.003-05:002009-06-23T21:18:27.195-05:00<span style="font-size:130%;">Not much change today. Kyle is getting less sedation, so he is more awake, <span id="SPELLING_ERROR_0" class="blsp-spelling-corrected">agitated</span> and wiggly. While no parent wants to see their child uncomfortable or in pain, it looks as if progress and healing are going to be uncomfortable.</span><br /><br /><span style="font-size:130%;">Kyle has lost more fluid today through the dialysis, but still looks the same and can't open his eyes although he tries. Logic would tell us that he has to shrink eventually if we keep pulling fluid off of him.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">Shiloh and I are doing well. We are cautiously <span id="SPELLING_ERROR_1" class="blsp-spelling-corrected">hopeful</span>. We're trying hard not to ride the emotional roller coaster of getting excited on good days and then crashing on bad days.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">Thank you for your prayers, posts, and support. It's truly an encouragement as we read them and know that people are <span id="SPELLING_ERROR_2" class="blsp-spelling-corrected">interceding</span> on little Kyle's behalf. </span>Unknownnoreply@blogger.com6tag:blogger.com,1999:blog-962279502317306091.post-361753791671361662009-06-22T23:01:00.003-05:002009-06-22T23:53:04.419-05:00<span style="font-size:130%;">We had a "care conference" today. This consisted of gathering with most of the specialist and general doctors that have been caring for Kyle in an attempt to exchange information and develop an overall strategy for Kyle's healing. We had a lot of questions for the doctors: some practical, some gut-wrenching, all difficult. Overall, we felt the staff did a great job of answering these tough questions. My final question of which I was most dreading was "Do we have enough collective confidence that Kyle has the potential to improve to continue the course?" Their answer summarized was that while Kyle is a very sick baby, at this time they are <span id="SPELLING_ERROR_0" class="blsp-spelling-corrected">hopeful</span> that he <em><strong>can</strong> </em>recover. So we will continue trying to take fluid off with dialysis, continue trying to give more milk, continue treating infections, continue treating the possibility of mold, and continue on the <span id="SPELLING_ERROR_1" class="blsp-spelling-corrected">ventilator</span>. . . . continue the course.<br /><br />It was a good meeting and when the dust had settled, while <span id="SPELLING_ERROR_2" class="blsp-spelling-corrected">hopeful</span>, they can't predict the future, and they can't really guess at the future for liability reasons. But I tactfully assured them that was o.k. - doctors prescribe medicines; God is the one who heals.<br /><br />Kyle has had a good day today. They have taken off more fluid, but he is more swollen - the mystery continues. He hasn't been able to open his eyes for several days now.<br /><br />We continue to wait upon the Lord. Thanks to all who continue the course of prayer with us.</span>Unknownnoreply@blogger.com9tag:blogger.com,1999:blog-962279502317306091.post-41723225822096190262009-06-21T23:54:00.002-05:002009-06-21T23:59:41.082-05:00Sunday, June 21 2009<span style="font-size:130%;">Kyle has had a little bit better day. He is negative on his fluids, which helps with the swelling. They removed one of his drainage tubes. He is back on his feeding schedule, and he went down on both of his blood pressure medications. He continues to have <span class="blsp-spelling-error" id="SPELLING_ERROR_0">alot</span> of swelling. </span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">We will be meeting with the team of doctors who are caring for Kyle. We will have the opportunity to ask questions and find out what the game plan is for Kyle. Please pray for us that the meeting will go well. God is good and still on His throne. </span>Unknownnoreply@blogger.com9tag:blogger.com,1999:blog-962279502317306091.post-87074420326016576802009-06-20T21:54:00.004-05:002009-06-20T22:19:45.283-05:00<span style="font-size:130%;">Today was not a good day for baby Kyle. He developed an infection last night and it has taken a toll on his body, specifically his blood pressure. He therefore had to go on antibiotics, more blood pressure medicine and was taken off his milk. Because of this and other complicating factors, he has taken on more fluid, which doesn't help the swelling problem. More swelling (<span id="SPELLING_ERROR_0" class="blsp-spelling-corrected">edema</span>) equals more pressure on the lungs, and so on and so forth and so on . . . All this to say, while it has been a relatively small setback for Kyle's healing process, the day has had a devastating effect on Shiloh and me.<br /><br />I'm thankful that my morale is not a determining factor in Kyle's success. May all who read this not fall to the temptation that our prayers fall upon deaf ears. The Lord our God WILL have the victory in Kyle's life - one way or the other.<br /><br />Thank you for your prayers for Kyle and for our family.</span>Unknownnoreply@blogger.com9tag:blogger.com,1999:blog-962279502317306091.post-71427463920088763762009-06-19T23:32:00.002-05:002009-06-19T23:41:37.777-05:00Friday, June 19th 2009<span style="font-size:130%;">Kyle is 8 weeks old today, and he continues to fight. They did not pull as much fluid off today as yesterday, even though there is still some swelling. They want to take it slow over the next few days. He continues to receive milk through a feeding tube, and they have increased the amount he is getting. </span><br /><br /><span style="font-size:130%;"></span><br /><br /><span style="font-size:130%;">We continue to be encouraged by the comments and prayers left for us on this blog. Also, it's so comforting when our prayer pagers go off. Prayer is a powerful thing! </span>Unknownnoreply@blogger.com5tag:blogger.com,1999:blog-962279502317306091.post-41055396723078577482009-06-18T22:55:00.002-05:002009-06-18T23:11:52.234-05:00Some good news...<span style="font-size:130%;">Today has been a better day for sweet Kyle. The dialysis worked much better today and they were able to clean out a "clot" in one of his other drain tubes. The combination of the clear drain tube and the dialysis has left Kyle less swollen and able to open his eyes once again. His urine output remains too low and strong kidney function is a key component to his recovery. God is in control and we are trusting Him and are patiently waiting on His timing in the healing process.</span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">Please continue to pray that Kyle's kidneys will begin to work <span class="blsp-spelling-corrected" id="SPELLING_ERROR_0">efficiently</span> and that the Lord would work in such a way as to allow us to get good news each day as Kyle continues to recover. We are learning each day to wait on the Lord, and hope He is glorified in and through this difficult time. </span><br /><span style="font-size:130%;"></span><br /><span style="font-size:130%;">Thank you again for all your prayers and comments...what a blessing you are to us and to Kyle!</span><br /><span style="font-size:130%;"></span><br /><div align="center"><span style="font-size:130%;">"In the morning, O LORD, you hear my voice; in the morning I lay my requests before you and wait in expectation." </span></div><div align="center"><span style="font-size:130%;">Psalm 5:3</span></div>Unknownnoreply@blogger.com6tag:blogger.com,1999:blog-962279502317306091.post-24580875821744385922009-06-17T18:01:00.004-05:002009-06-17T21:47:50.361-05:00<span style="font-size:130%;">Kyle continues to swell even though the nurses are pulling fluid off through the dialysis. His urine output has not been as good today as the last couple of days. At the time of this post, his eyes are swollen shut. To be honest, as the day goes on, I become more frustrated and discouraged. Please pray that we don't loose sight of Who is in control and that we wait on Him.</span><br /><span style="font-size:130%;"></span><br /><span style="color:#3366ff;">Please continue paging us when you pray, even if it is in the middle of the night. We are up at all hours of the day and night. The "buzz" of our pagers is what makes the day bearable and it lets us know we are not in this alone. (Information about our prayer pagers is on the left hand side of the home page)</span>Unknownnoreply@blogger.com9