Tuesday, June 30, 2009

Lab work indicates that Kyle did not have an infection after all, so they took him off his "just-in-case" antibiotics today. His milk intake was up to 15 ml per hour, but they are currently stopping them to run some tests because they suctioned some bloody fluid out of his stomach and also found some in his urine catheter. We'll see what that's all about. He has been resting comfortably most of the day with no change to speak of.

I would like to be strong and write encouraging words today, but I'm going to be honest. Shiloh and I are tired. We are ready for this to be over. Sixty nine straight days in a hospital. I'm tired of our daughter living like a gypsy. I'm tired of the helplessness of watching my wife cry. The only time our son is awake is when he is being poked and prodded at. This is an emotional marathon with no finish line in sight. It's a nightmare from which I cannot awake.

Nevertheless, I am thankful for God's mercy and loving kindness; I do realize that there are those suffering far more than we are; and I know that nobody likes a complainer.

We will continue to wait upon our Lord, and rely on Him as our source of strength.

14 comments:

  1. Steve if anyone has earned the right to do some complaining it is you. Wouldn't we all like to be superhuman sometimes? How fortunate we are that our loved ones and friends and God doesn't hold it against us because we are not. It is hard to see the ones we love suffer and worse when we are drained emotionally and physically at the same time. Each day in my prayer for Kyle, I lay him in God's hands. I will now pray for you find a normalcy in the midst of the chaos in which you are living so that you may get rest and some peace of mind. Love to you, Shiloh, Abigail and Kyle.

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  2. Dear Steve and Shiloh,
    I know there are no words I can speak to bring you comfort. I know there is nothing I can do, no matter how hard I try, to make you "feel" any better. I honestly don't know how you feel...but I do know someone who does. The God we serve knows what it is to watch a Son suffer. He knows your pain...Please do not give up. Please do not think you are alone. Please continue to crawl along the course before you. I don't know if you will ever know how much you and Kyle are loved. I am not sure you understand how much we can see Christ in you through all of this. God is at work! I love you both so much. Don't give up...God is at work! Love, Raunch

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  3. Ps 62:5 "Find rest, O my soul, in God alone; my hope comes from him."

    We are praying for you all. You all are on my heart throughout the day. We are constantly lifting your family up in prayer. Hoping for the day of good news, that we may share in your joy soon enough.

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  4. Rom 5:3-5 "Not only so, but we also rejoice in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character, hope. And hope does not disappoint us, because God has poured out his love into our hearts by the Holy Spirit, whom he has given us."

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  5. I understand the feelings you're having for we went through a very similar, long-endless-tunnel in the hospital with our daughter. As others have said, there really are no words that can bring the comfort and peace you need. That has to come from God, but just know that you have people from all over the world loving you and praying for you.

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  6. Steve and Shiloh, do not think for one second that you should not show weakness. All of us who visit this bog are here to support you. Letting your true emotions out is necessary and encouraged here. Your family is going through something that most of us cannot imagine. All you can do is take each day, one at a time, and try to make the best of it. Right now it seems like this will never end and that your lives are upsidedown. Just know that some day, when you look back on this time, it will be a distant memory and you will have all the happy times in between to reflect upon. Please know that you have many people, family, friends, strangers that pray for you and your family each and every day. In times when you are overwhlemed, we will stay strong for you.
    Your friend,
    Jamie Wood

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  7. Steve,
    Thank you for your transperancy. How are we to know how to pray? Even Christ in the garden begged his disciples to pray, for he knew he was going to face the hardest challenge of his life. Don't butter things up, so the blog will look pretty. You don't have to encourage the ones reading this. On the contrary, we want to encourage you and Shiloh. I know I speak for everyone who reads this. We are here to pray for you and intercede on your behalf and your family. Steve, I pray that you will continue the course with the steadfast strength the Lord has given you. Be there for Shiloh. Let your family help you with Abigail. She is so resiliant, and this is one big adventure for her. Yes, she is tired and ready for you to come home, but she's learning life lessons as well. The Lord has her best interest at heart, too. Steve, you have always been one of my favorite people in the world! =) Why? I have no idea! I just love you and Shiloh, and count it a blessing to be able to pray for your family.
    Love,
    Mandy

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  8. The Mullins FamilyJuly 1, 2009 at 11:39 AM

    We LOVE you all so much and are continuing to stay the coarse on your behalf. It is in the battles and storms of life that we,your brothers and sisters in Christ,count it a privilege to pray for you in God's throne room at His feet. "This too shall pass" sounds so cliche' but it is true. Continue to be real before your God. He truly is your Daddy/Abba in Heaven and longs to comfort you during this very trying time. Ask Him to show you how His word is applicable to your life right now? I'm referring to "He will never leave you nor forsake you!" Heb. 13:5 In my last battle/trial here on Earth I literally clung to this promise/verse. You may not see any light at the end of your tunnel right now, but it's in the believing that it's still there and you will see in God's perfect timing. We want you all home too but we're bringing Him the 'sacrifice of Praises' in the meantime and clinging to the blessings He is showing us, your 45 days at the Ronald Mc. house is huge, thank you Jesus!

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  9. Hi Steve and Shiloh,
    While we may have only met in passing, please know both of you and your children are in my thoughts and prayers. I pray that this will all be a distant memory for you someday and that Kyle will come out of this stronger than the doctors thought possible. I always loved this quote by Franklin Roosevelt, "When you come to the end of your rope, tie a knot and hang on." We are all out here to support you and send our love.

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  10. Steve and Shiloh,
    In your weariness and exhaustion, know that we are lifting you up and praying for your strength, endurance and encouragement.
    "Though He slay me, yet will I trust Him"
    Job 14:15
    Love, Ron and Aubrea

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  11. Steve and Shiloh-
    It is ok to be tired and it is ok to want this to be over. Ya'll have been through a torturous ordeal and we cannot begin to imagine the strain this has taken on your whole family. We are praying for strength for ya'll and that God would help to heal Kyle quickly so you can begin the next phase of your life with him. If there is anything at all that we can do to make things easier on ya'll, please let us know. We love ya'll and you can lean on us anytime!

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  12. You guys, it is ok to tell us your hearts are hurting!
    I wrote this verse to you before but I want to again cuz it always helps me.
    Evening, and morning, and at noon, I will pray, and cry aloud; and He shall hear my voice. Psalms 55:17
    You can stomp your foot every once in a while you know. It helps.
    You guys are loved!
    The Sires Family

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  13. Steve and Shiloh,

    You are in our prayers. We can't imagine what you are going through. One quick thought we wanted to share - there is this amazing thing about God, He will never love you less or more than He does right now. No matter what you are feeling, God's love never changes. Know how much you are loved. It's okay to be human. God created us and loves us. He understands.

    Jake and Tammy Ammon

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  14. Steve and Shiloh,

    You are and have been in my prayers daily since day one. You have done so well. You have leaned on the only One who we all must depend on at a time such as this. God will never let you down. Just keep your eyes on Him. I love you so much. It has been my joy to see the two of you grow into the strong christians that you are. May God continue to carry you.

    Love you, Evelyn Vineyard

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