Friday, July 17, 2009
Monday, July 13, 2009
Saturday, July 11, 2009
Shiloh and I had been praying about what to do. Between Kyle getting no milk and the doctors recommendations, it became clear.
With the Staples and Ferren families gathered, we took Kyle into a more personal closed room. . . . and pulled the breathing machine. Brent read some Psalms. After a few minutes of labored breaths, God answered my prayers. The answer was no.
Ultimately, though, our prayer was for the Lord's will to be done. And I believe it was. No more poking and prodding. No more pain. No more dialysis. We wanted to take Kyle home. He's home now. He will not come to me, but I will go to him.
This will be the last post. There is no way to thank everyone who has come by, called, given us food and money, taken care of us, taken care of Abigail, and most importantly, prayed for us. I wish we could thank everyone properly, but there is no way. If I have one final request on this blog, it would be to continue to remember us and especially Shiloh in your prayers as the grieving process is only just beginning.
To God be the Glory.
Friday, July 10, 2009
We told Abigail today that the doctors thought brother was going to die. That was hard. She took it better than we did. We'll see if it sinks in; she's only four, but she's so smart.
We are going to try to meet with Dr. Susan Davis tomorrow. Shiloh and I really connected with her, and she also seems to be the most optimistic. If she agrees with the other doctors that we need to quit, then we will have a decision to make. A decision that no parent should ever have to make.
Kyle has basically been on life support (breathing machine) for over ten weeks. I think what the doctors are saying is that whether we turn the breathing machine off or leave it on, it doesn't change his chances of healing. The only difference is how long he survives.
The God we serve is powerful enough to heal Kyle, regardless of our decision. I know that. He opens doors that no one can close, and He closes doors that no one can open. We're just praying that we make decisions for Kyle that honor God and are in accordance with His will.
I'm still praying that God will heal little Kyle's body. Perhaps the Lord will be gracious to me and let the child live. We'll see. It ain't over till it's over.
Wednesday, July 8, 2009
I told them I thought Kyle was going to make it. Kyle has not given up. I asked the medical staff to continue to work hard for him, which they are.
"Outside of a miracle" he says. Miracles are what God is in the business of doing. If I am going to pray for God to heal little Kyle's body, then until the answer is clearly no, I'm going to believe that is what's going to happen. If we don't believe it, we need to stop praying for it.
Tuesday, July 7, 2009
Thanks for all your thoughts and prayers and support!
Monday, July 6, 2009
Saturday, July 4, 2009
By the breath of God's nostrils he can part the Red Sea. He obviously has the power to completely heal little Kyle in a second if He so chooses. If He so chooses.
I'm not loosing faith, I'm loosing hope. There is a BIG difference. My faith is that God loves me and sent His Son, Jesus Christ, to pay the penalty for my sin on the cross; that on the third day He raised Him from the dead, and is now seated at the right hand of God; that I have eternal life with Him in heaven by accepting Christ's sacrifice and committing my life to Him; and that He offers this free gift of eternal life to anyone who would do the same. THAT is where my faith lies. It is unwaivering.
My hope, however, is waining - hope that it is God's will for my son to be healed. We will continue to pray for God's will to be done, and we will praise Him whatever that may be.
Friday, July 3, 2009
Thank you to all for your prayers and support. WE COULDN'T DO IT WITHOUT YOU, ALL!!!
Thursday, July 2, 2009
At the time of this post, he is stable, back on dialysis, and looking forward to possibly starting milk again tomorrow. He is poised for a good day tomorrow.
Wednesday, July 1, 2009
Kyle seems to take it all in stride. He has such a strong will to live. He cracked his eyes open for his momma today about half a millimeter. He has also lost a substantial amount of fluid today and yesterday, which is his primary job right now.
May God bless you who are praying for Kyle and we thank you for your comments on the blog. They're always so insightful and encouraging. Sometimes I wish some of you were writing these posts instead of me.
Tuesday, June 30, 2009
I would like to be strong and write encouraging words today, but I'm going to be honest. Shiloh and I are tired. We are ready for this to be over. Sixty nine straight days in a hospital. I'm tired of our daughter living like a gypsy. I'm tired of the helplessness of watching my wife cry. The only time our son is awake is when he is being poked and prodded at. This is an emotional marathon with no finish line in sight. It's a nightmare from which I cannot awake.
Nevertheless, I am thankful for God's mercy and loving kindness; I do realize that there are those suffering far more than we are; and I know that nobody likes a complainer.
We will continue to wait upon our Lord, and rely on Him as our source of strength.
Monday, June 29, 2009
We were given some rather good news, which we are not always getting. The liver doctor came by and explained that he believes the liver is "clogged" and not damaged. He will give Kyle medicine that will flush his liver and hopefully clear it up. They are continuing to increase his feeds as long as he tolerates it. We are shooting for 16 mls/hr. Kyle is up to 11mls/hr. His cardiologist looked at the eco for today and doesn't believe the "spell" he had the other night was because of the heart. His heart is doing well. The first 24 hours of lab work, on the blood and urine, are negative for infection. (Tests will be run for 48 hours to make sure there is no infection.)
Go God Go!!! We give you praise for the good news we received.
Sunday, June 28, 2009
This morning at about 3:00 he had a little bit of a scare (blood pressure and O2 saturation drop), with the outcome being they think he might have another infection. He was put on more antibiotics while we await tests results. He seems to be doing fine now.
Kyle also acquired another specialist today: a liver doctor. Recent tests found low veinous flow to one side of the liver, as well as spotty liver function. While tests are being done, the liver doctor doesn't seem too worried about it. He says the liver is the most resilient organ in the body.
This might sound like a negative post. But at the end of the day, Kyle is still loosing fluid, he looks comfortable, his skin color is good. . . Go Kyle Go!
Friday, June 26, 2009
Some good news. . . the swelling seems to be subsiding ever so slightly in his face, even though they have not been as aggressive at taking off fluid. Also, we are back in the Ronald McDonald House for another 45 day stint. We can now walk back and forth to the hospital.
Special thanks to anyone reading from Crossings Church in Waco for their love offering. The Lord (through His people) has been providing for our every need during this trying time, even what we don't ask for from people we've never met. Amazing.
Thursday, June 25, 2009
I hope all are well who read this. We are certainly not naive enough to think that we are the only ones going through tough times. So thank you for taking time to think of us and pray for baby Kyle.
Wednesday, June 24, 2009
Tuesday, June 23, 2009
Kyle has lost more fluid today through the dialysis, but still looks the same and can't open his eyes although he tries. Logic would tell us that he has to shrink eventually if we keep pulling fluid off of him.
Shiloh and I are doing well. We are cautiously hopeful. We're trying hard not to ride the emotional roller coaster of getting excited on good days and then crashing on bad days.
Thank you for your prayers, posts, and support. It's truly an encouragement as we read them and know that people are interceding on little Kyle's behalf.
Monday, June 22, 2009
It was a good meeting and when the dust had settled, while hopeful, they can't predict the future, and they can't really guess at the future for liability reasons. But I tactfully assured them that was o.k. - doctors prescribe medicines; God is the one who heals.
Kyle has had a good day today. They have taken off more fluid, but he is more swollen - the mystery continues. He hasn't been able to open his eyes for several days now.
We continue to wait upon the Lord. Thanks to all who continue the course of prayer with us.
Sunday, June 21, 2009
We will be meeting with the team of doctors who are caring for Kyle. We will have the opportunity to ask questions and find out what the game plan is for Kyle. Please pray for us that the meeting will go well. God is good and still on His throne.
Saturday, June 20, 2009
I'm thankful that my morale is not a determining factor in Kyle's success. May all who read this not fall to the temptation that our prayers fall upon deaf ears. The Lord our God WILL have the victory in Kyle's life - one way or the other.
Thank you for your prayers for Kyle and for our family.
Friday, June 19, 2009
We continue to be encouraged by the comments and prayers left for us on this blog. Also, it's so comforting when our prayer pagers go off. Prayer is a powerful thing!
Thursday, June 18, 2009
Please continue to pray that Kyle's kidneys will begin to work efficiently and that the Lord would work in such a way as to allow us to get good news each day as Kyle continues to recover. We are learning each day to wait on the Lord, and hope He is glorified in and through this difficult time.
Thank you again for all your prayers and comments...what a blessing you are to us and to Kyle!
Wednesday, June 17, 2009
Please continue paging us when you pray, even if it is in the middle of the night. We are up at all hours of the day and night. The "buzz" of our pagers is what makes the day bearable and it lets us know we are not in this alone. (Information about our prayer pagers is on the left hand side of the home page)
Tuesday, June 16, 2009
"Be strong, and let your heart take courage, all you who wait for the Lord!"
Monday, June 15, 2009
We would like to thank our church family for the generous love offering given to help with our hotel stay. The Lord continues to provide for our every need. We needed a place to stay when Kyle first arrived, and the Lord opened the door for the Ronald McDonald House. We were able to stay there for 45 days. Now, we are in a hotel, and the Lord has provided the finances for our stay there. We have been given love offerings from others, as well. New Covenant Fellowship in Waco gave us a love offering, and individuals along the way have helped us financially. We are eternally grateful for everything the Lord has provided through the generosity of His people. He meets our every need. He is watching over us and Kyle, and He has provided each step of the way. Words cannot express our gratitude for the prayers, cards, visits, and gifts we have received. We are so blessed! What a mighty God we serve!!
Sunday, June 14, 2009
Today, has been a better day for Kyle. The dialysis seems to be working more efficiently today. However, the swelling remains unchanged. They have been able to wean Kyle off some of his medications, which is encouraging as well. We look forward to making more steps in his recovery this week. Please continue to pray for those who work with Kyle. May the Lord impart wisdom to the doctors and nurses who care for Kyle. Pray that this week will be full of good news as God works each day to heal and restore Kyle's physical strength. Thank you again for praying. Thank you for letting us know you have visited this blog by leaving comments for us to read on days when we are so tired. God is faithful. God is God!
Saturday, June 13, 2009
Friday, June 12, 2009
Thursday, June 11, 2009
Wednesday, June 10, 2009
Please lift up in prayer the doctors and nurses attending Kyle. Specifically, pray that they will be very attentive to Kyle's needs. Pray for wisdom, and please continue praying for Kyle's kidneys.
Tuesday, June 9, 2009
Monday, June 8, 2009
It has been a good day for Kyle. He has been on a pacemaker, and he was taken off today. He is holding his own and doing well. They have increased the amount of milk he is receiving, and his urine output has been good.
We have a specific prayer request for Kyle. He will be undergoing a surgical procedure tomorrow to replace his dialysis catheter. This is the tube used to transport fluids to and from his body for the express purpose of doing the dialysis. The surgery will be at 7:30 tomorrow morning. Please say a prayer for Kyle tonight, and remember him in the morning. Specifically, pray that this will not be a set back for Kyle, but that he will continue in his recovery. Thank you in advance for remembering Kyle in your prayers. There are not words to express our gratitude for the intercession taking place for Kyle.
Go Kyle Go!!!
Sunday, June 7, 2009
They have also cut back on Kyle's blood pressure medication. His blood pressure has been good throughout the day, and we are so thankful. They have also increased the amount of milk he is receiving.
Please continue to pray specifically for Kyle's kidneys.
Go Kyle Go!!!!!
Saturday, June 6, 2009
Friday, June 5, 2009
"For you created my inmost being; you knit me together in my
mother's womb. I praise you because I am fearfully and wonderfully made;
works are wonderful, I know that full well. My frame was not hidden
when I was made in the secret place. When I was woven together in
depths of the
earth, your eyes saw my unformed body. All the days
for me were written
in your book before one of them came to
Thursday, June 4, 2009
"Wait for the LORD; be strong and take heart and wait for the LORD."
Wednesday, June 3, 2009
Please continue to pray that God would impart His wisdom to the doctors and nurses attending Kyle. Pray that the swelling in his head would go down. Pray for his kidneys. He remains on dialysis. It's so comforting to know there are friends and family around the world praying for Kyle. We believe in the power of prayer!!
Tuesday, June 2, 2009
He underwent a procedure today to remove a sore spot on his arm. The procedure was successful, and he is recovering from that.
The main concern now is the blood clot that was located in his shoulder. Kyle's head and neck are very swollen, and it is believed that this is caused from the blood clot; however, a sonogram was done on that area, and it appears the blood clot is no longer there. The doctors and nurses attending Kyle are baffled because his head and neck are still swollen. They are doing further tests to see if the clot is gone or if it has moved. There is only One who knows where the clot is, and our prayer is that He will impart wisdom to the medical staff. He is the Great Physician! Please pray for wisdom. We are hoping that the clot is gone for good, and that God has already healed Kyle from this. Or, maybe He is setting the stage for a miracle. We pray doctors and nurses will stand speechless because of God's work!! Please intercede on behalf of Kyle and all those at Cook Children's Hospital who are directly involved with Kyle's care.
To God be the Glory...
Monday, June 1, 2009
The cause of the swelling in his face and head is a blood clot located at a site on his shoulder. Earlier last week, doctors had to relocate a med-line from his shoulder to his leg. Because the med-line had been in his shoulder so long, a clot formed. Kyle has good blood flow to the brain and his brain is getting plenty of oxygen. But, because of the clot, fluid is collecting and causing his face and head to swell. Much like his kidney function, Kyle's body must take care of the clot. Please continue to pray that his kidneys would heal and the swelling in his body and head would also heal.
As you read these daily updates, please feel free to leave a comment, prayer or scripture for the Staples family. Your encouraging words mean so much to all of us. We are so thankful for the hundreds of people praying us through!
"This is the Day that the LORD has made; let us rejoice and be glad in it."
Psalm 118:24 (NIV)
Sunday, May 31, 2009
Thank you again for the words of encouragement and scriptures. We love reading through those and are encouraged by the kind words.
Saturday, May 30, 2009
They have discontinued weaning him from the ventilator for now. He has so much swelling that they don't want to put too much on his lungs.
Please pray that God would give the doctors wisdom. After all, He is the Great Physician. He created all those little organs, and He is the one who can heal!!
Friday, May 29, 2009
They removed his catheter today, and he is continuing to receive milk through a feeding tube.
Kyle is still swollen, but his kidneys are functioning. He has been through so much in his short lifetime. He is maintaining and is stable. His healing process is going to take some time.
Thursday, May 28, 2009
He had a feeding tube placed, and they have been giving him milk. They have to start with very small amounts and see how he does. Pray that he will do well.
God is good. We entrust Kyle to Him everyday.
Wednesday, May 27, 2009
Tuesday, May 26, 2009
Sunday, May 24, 2009
Saturday, May 23, 2009
Friday, May 22, 2009
Thursday, May 21, 2009
Kyle Bradley Staples was born Friday, April 24th 2009 in Stephenville, TX. Seemingly, everything was great with Kyle. He had a fast delivery with no complications; however, that day the Pediatrician picked up on a heart murmur. She checked his oxygen levels, and they were low. She informed Kyle's Mommy and Daddy that he would need to be moved to Cook Children's Hospital in Fort Worth for further testing. Kyle was 12 hours old when the Teddy Bear Transport team from Cook Children's arrived. He rode by ambulance to the hospital with his Daddy by his side. His Mommy, Shiloh, was released from the hospital only 15 hours after giving birth. She was rushed to Fort Worth to be by Kyle's side. At the hospital, many tests were done and it was discovered that the left side of Kyle's heart was underdeveloped. The aortic valve was too small and the aortic arch was too narrow. Steve and Shiloh were informed that Kyle would require open heart surgery. The news was devastating!! Here is a timeline of events for the past month.
Friday, April 24th 2009: Kyle Bradley Staples is born in Stephenville, TX at 1:57 a.m. He weighed 7 lbs. 13 oz. and was 19 inches long.
The Pediatrician in Stephenville picks up on a heart murmur and calls for the Teddy Bear Transport from Cook Children's Hospital. Kyle is taken by ambulance to Fort Worth. Tests are run and Kyle needs heart surgery. He is placed in the NICU until the surgery.
Monday, April 27th: Steve and Shiloh meet with Dr. Vincent Tam M.D.. He is the Medical Director of Cardiothoracic surgery. He explains to Steve and Shiloh what will be done for Kyle's heart surgery. The surgery is scheduled for the next day.
Tuesday, April 28th 2009: Kyle has open heart surgery to repair the aortic valve and increase the size of the aortic arch. For the first time since leaving Stephenville, Steve and Shiloh are able to hold Kyle. He goes into surgery at 10:45 a.m, and he is finished by 5:00 p.m. By all accounts, the surgery went well and Dr.Tam was pleased. Kyle's chest is left open to allow for all the swelling to go down. Steve and Shiloh are told the chest will be closed in 3-4 days. Kyle is moved to the PICU.
Saturday, May 2nd 2009: Kyle's chest is closed.
Monday, May 4th: Kyle has an echo cardiogram and they discover a hole between the ventricles. Dr.Tam is not pleased with Kyle's recovery. The pressure on the left side of Kyle's heart is too high. Dr.Tam explains to Steve and Shiloh that the pressure could be the result of three possible situations: 1)The aortic arch is still too narrow. 2) The aortic valve is not working. 3)The hole in the heart is causing the pressure.
More surgery is needed...
Tuesday, May 5th 2009: Kyle had a rough time in the early morning hours. A doctor sat with him through the night monitoring him. At 7:30 a.m, Kyle is prepped for surgery. The surgery begins at 10:30 a.m and is finished by 9:30 p.m. Dr.Tam repaired the hole between the ventricles and increased the size of the aortic arch. Dr.Tam performed the Ross procedure to repair the valve. He took the pulmonary valve from the right side of the heart and replaced the aortic valve. A valve from a cadaver was used in place of the pulmonary valve. The nurse tells Shiloh and Steve that Kyle's heart is happy with the changes made. His chest is left open again, and he is moved back into the PICU.
Wednesday, May 6th 2009: Kyle's kidneys begin to fail. He is placed on dialysis.
Thursday, May 7th 2009: Part of one of Kyle's lungs collapses. Doctors want to put him on an ECMO (Extracorporeal Membrane Oxygenation) machine. Dr.Tam adjusts Kyle's medications and decides that ECMO is not the best thing for Kyle at the time.
Friday, May 8th 2009: In the early hours of the day, Kyle becomes very unstable while a nurse suctions out his lungs. Steve and Shiloh are called to the hospital. By the time they arrive, Dr.Tam is there. He explains that Kyle's numbers drop during any procedures. Dr.Tam's recommendation is that Kyle be placed on an ECMO machine. The ECMO machine is a technique that gives the blood oxygen outside of the body. One tube drains the blood out of the heart and sends it to the machine to pick up the oxygen. After the oxygen gets into the blood, the other tube brings the blood back to the heart. The ECMO will give Kyle's organs a rest and allow him to recover from all the surgery. He is placed on ECMO that day.
Thursday, May 14th 2009: They start weaning Kyle off the ECMO machine.
Monday, May 18th 2009: Kyle is taken off the ECMO machine and dialysis. It was a good day!
Tuesday, May 19th 2009: Kyle stops urinating and is placed back on dialysis.
Wednesday, May 20th 2009: Kyle remains on dialysis but is very stable. He has a good day!
Thursday, May 21st 2009: Kyle is very swollen. Dr.Tam wants to close his chest, but he cannot do this until the swelling goes down. Kyle is still on dialysis. As soon as his kidneys start functioning the swelling will go down. Then, his chest will be closed. He is stable.