Wednesday, July 1, 2009

Last night Kyle had a "bleed" in his stomach. Internal bleeds are always a risk when a child is on a high amount of anti-clotting agents (blood thinners). Internal bleeds are also serious business since there is no good way to stop them. The doctors turned off the blood thinner and gave him extra platelets to help his stomach clot. As you can imagine, this has put him at a higher risk for life threatening blood clots as well. As of this evening, the stomach tube has pretty much stopped sucking blood out, which is good. We're hoping to get over this hurdle quickly and get him back on the milk.

Kyle seems to take it all in stride. He has such a strong will to live. He cracked his eyes open for his momma today about half a millimeter. He has also lost a substantial amount of fluid today and yesterday, which is his primary job right now.

May God bless you who are praying for Kyle and we thank you for your comments on the blog. They're always so insightful and encouraging. Sometimes I wish some of you were writing these posts instead of me.

7 comments:

  1. Hey Kyle what a tough little Texan you are proving to be. Of course those Okie genes for back up must be helping out some, too. Just sleeping in God's hands each day, trusting Him to care for you is such inspiration of bravery to us all.
    Needless to say all these ups and downs you have is more than a little frustrating to your Mommy and Daddy BUT you just keep on coming back to fight again. What a kid!!
    Hope you have a easier time tonight.
    I'll pray for you, your caring nurse, and your family. Love to you all.

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  2. Dear sweet Jesus, Thank you so much for sweet baby Kyle and his family and what they mean to us. Lord thank you for the watchful eyes that are caring for him and for the wisdom that you have imparted to them. Father we are thankful for little Kyle's strong will to live and Father we know that when you are ready for him to get up and run that will happen also. Father we ask for a hedge of protection around Steve, Shiloh and Abigail that you will guard their hearts and minds and that you will give them positive vibes and thoughts. Thank you for the blessing that Shiloh received when she saw Kyle's little eyes open for a brief moment. Lord we know they long to hold him and Father let them feel your arms around them. Father we pray for a brighter tomorrow for it is in Jesus name we pray . Amen
    We love Him, because He first loved us.
    1John 4:19 Love you guys, GO KYLE GO!! mcgregors

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  3. I have been so touched by so many things and I wanted to share this morning's thoughts from Spurgeon's devotional:
    "Blessed is the fact that Christians can rejoice even in the deepest distress; although trouble may surround them they still sing; and like many birds, they sing best in their cages. The waves may roll over them, but their souls soon rise to the surface and see the light of God's countenance; they have a bouyancy about them that keeps their head always above the water and helps them to sing amid the tempest, 'God is with me still'. Trouble does not necessarily bring consolation with it to the believer, but the presence of the Son of God with him in the fiery furnace fills his heart with joy."
    Psalm 33:21 "Our heart is glad in Him"

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  4. We are praying for you!
    The Sires Family

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  5. Baby kyle your in our prayers.

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  6. Dear Steve & Shiloh,
    Although I’ve tried to do better about calling the pagers, including during the middle of the night after one of your notes said that would be okay, I’ve realized, as I’m sure others have too, it’s often just not possible to have a phone handy when praying for Kyle and your family. I feel quite certain that if it was though, the two of you would be hearing an almost constant buzz.
    Since you don’t really know me, I’ve been hesitant about posting comments in your blog even though it’s been a priority of mine to read it first thing every morning or last thing every night (or both). It’s hard for me to put my thoughts into words, but after reading so much of what you’ve taken the time to write, I want to try and stress what a positive impact you’ve had, and how you’ve touched the hearts of countless numbers of people (including many like me whom you don’t really know). Thank you so much for your selflessness in sharing your new baby son with all of us, and thank you for giving us the opportunity and privilege to lift up your family and needs in prayer. I can only imagine how difficult it has sometimes been to write about the day’s events. Steve, you were not complaining on Tuesday night—your feelings are understandable, and I’d say expected (and certainly already known by God). What has possibly been unexpected is the way you and Shiloh have consistently and constantly praised and honored God throughout this long, hard, and often overwhelming journey with all its many ups and downs and unknowns. Your love for God, family, friends and others, your courage and strength through the toughest of times, your appreciation for all acts of kindness and for prayers on your behalf, and your unending faith and trust in God have been demonstrated over and over, day by day, through both the good and the bad times.
    I must say that when I read your Monday night’s entry I honestly was surprised about the swelling still being there. Knowing that so many people around the world ARE praying and that God IS listening, knowing that God must be so proud of you and the way you’ve handled the past 71 days, and knowing that you are in a really good children’s hospital with some of the best doctors available, I genuinely expect each time I read from your blog that God has “finally” divinely intervened and totally healed Kyle so that he can soon go home with you and Abigail. Since it hasn’t happened yet, we all just continue praying—trusting that God’s Will will be done in His perfect timing, and that meantime He’ll continue to be right there for you, just as He has promised He’ll always be. When things happen that make no sense to me and even seem cruel and unfair in my simple human mind, I have to remind myself that our all-knowing God is and has always been in control, He loves and cares for you and your precious children more than it’s possible for anybody else to, and He wants only what is best for you. From Our Daily Bread I recently read, “God suffers with us in our suffering. No one has suffered like the One who paid for our sin in the crucified body of his own Son. It is this God who asks us to trust Him when we are suffering and when our own loved ones cry out in our presence.”

    Know that you are greatly respected,
    Just one of MANY, MANY who are praying for you

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